What is Epidermolysis Bullosa? Eddie Vedder’s new Netflix documentary raises awareness of heartbreaking skin condition
Pearl Jam frontman raises awareness for ‘butterfly children’ in Netflix documentary
- Eddie Vedder's new Netflix documentary, Matter of Time, focuses on Epidermolysis Bullosa (EB), a rare and life-threatening genetic skin disorder.
- The film features footage from Vedder's October 2023 Seattle concerts, which were organized to raise funds for clinical research into EB.
- Vedder and his wife co-founded the EB Research Partnership in 2010, an organization dedicated to funding research into the condition.
- The charity aims to find a cure for Epidermolysis Bullosa by 2030, with the documentary highlighting stories of patients, families and researchers.
- The film, directed by Matt Finlin, combines music and personal narratives to showcase hope, resilience and the power of community in the fight against EB.
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